Kryptonite

SM75_Vert_Preferred_Color_FINALAll super heroes have weaknesses; comes with the territory. Turns out, Emily is no different.

Ironically, it’s usually something that is typically good that can bring these giants to their knees. For Superman, that weakness is kryptonite. When present, it saps him of all his powers, leaving him a mere mortal. The rare mineral is actually from his home planet, and home is typically thought of as good.

For Emily, this last trial, while meant for good, brought her to her knees.

The combination of drugs along with the location of disease created a complication that resulted in Emily being hospitalized for eight days in a row between the end of April and the first week of May. During this time, Emily underwent multiple diagnostic procedures to identify the cause of symptoms. One symptom would subside only to give way to another, each new one more concerning.

Ironically, along with the cause of the problems, the testing also identified that the drugs were working. Several areas of disease were shrinking in just the ten days that Emily was on the treatment. Unfortunately, due to the complications, she can no longer take these drugs.

In the comics and movies, when it appears all of Superman’s powers have failed him and there is just no hope he’ll make it, he digs deep to the one super power that kryptonite cannot reach: his heart.

Emily doing origami with the MD Anderson Artist-in-Residence.
Emily doing origami with the MD Anderson Artist-in-Residence.

Emily did the same, finding the will to withstand the many tortures of not only the disease, the drugs and their side effects, but also the hospitalization itself, which is its own unique hell.

She battled back. She withstood all of it and was discharged from the hospital on May 5. On May 6, she woke up and went to work. Unbreakable.

In the subsequent weeks, we have met with our doctors and determined that it’s time to get started with a new treatment. The new protocol involves two drugs; one is a pill and the other an injection that I will give Emily every morning. Like the treatments before, this one will attempt to block a pathway within the cancer cells, starving them of a protein needed for them to survive and thrive. And like the other treatments, there are many possible side effects.

The new treatment probably won’t start for several more weeks, so we will spend this time recuperating and attempting to put some meat on Emily’s bones. Even before this, Emily was never one to put on weight easily, but she is up for the challenge. She’s never been one to shy away from a good bowl of queso.

Many of you have expressed an interest in helping in some way. Both Emily and I are not very good at asking for or receiving help, but we also know that we have been able make it this far because of our friends and family who have done so much to support us. And, we fully understand the desire to help and don’t want to take that from any one. With that in mind, I have added a new page to our site that gives information on ways that you can help if you are so moved. As always, we will be forever grateful.

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2 Comments

  1. I’m Morgan’s Mom & I’ll help in anyway I can. I live in Balyimore, MD, so running errands would be difficult. God bless!!!

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